How to Participate

How to Participate

We are currently recruiting participants for a study that aims to:

  • Investigate how language and other skills developed over childhood in carriers of the FMR1 premutation
  • Identify early developmental features that may be related to the FMR1 gene and understand how they may relate to language and social features later in development

Who can participate?

This is a family study that involves individuals with fragile X, with the FMR1 premutation, and their family members. The study also includes typically developing individuals and their parents. Families are being recruited from the Chicago area and Iowa because of a unique resource of developmental information that is maintained by the University of Iowa and made available with permission.

What does participation include?

We will ask you to do some tasks that involve words and sentences, pictures, and sounds. Other tasks involve looking at pictures and making judgments, doing puzzles, problem solving, and tracking eye movements. We will also collect a blood sample for use in this genetic study.

It will take approximately two to four hours to do the tasks, depending on how many you may have completed previously. We will schedule frequent breaks, and can break the assessment up into more than one session, if you prefer.

How are participants compensated?

Each participant will be compensated for their time as well as their travel and parking.

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